Saturday, March 28, 2015

Kick Your Knees UP and smile!

Oh, today has been such a busy one!

Packed with all kinds of fun things.

Callbacks for Mary Poppins were this morning and I had a blast! I am amazed at how much I am enjoying theater! Even callbacks are fun!

This was my token picture I took at the red light on my way home because I forgot to take one while at callbacks.

I had to laugh, though.

Part of callbacks was learning a tap number.


Let me tell you, I tried hard to get it.

All I tried to focus on was kicking up my knees at the right time and smiling all the while as if I had complete confidence!

Funny because I realized I just saw an analogy of my life.

That's what you have to do through life sometimes.

Kick your knees up and smile.

I don't always know what I am doing raising 3 children with special needs.

Heck, I don't even know what I am doing with myself sometimes.

I have learned, though, that dropping everything and pouting doesn't get me very far.

Jumping in and trying as hard as I know how, even while fumbling, all with a smile on my face has just got to, at least, stand for something.

It kind of brings a new meaning to that quote I've heard many times, "Life is a stage."

Sometimes, even when life is hard, if we can keep a smile on our face then, maybe no one will notice all the mistakes we are making along the way and they can just focus on our attitude and not so much our imperfectness.

Day 86 of 365 Days of Up

Friday, March 27, 2015

Just Evened Out

Well, I'm gonna be honest...

I know, that's not a surprise.

Today was not a good day for me.

I talked to Sister's Principal.

He was kind, nice, and diplomatic.

I was tough, blunt and honest.

Then he was kind, nice and diplomatic again.

Then I cried while I tried to explain the situation we are in.

Maybe he understood.

Maybe he didn't.

All I know is I'm on edge.

This "surprise" has kind of overshadowed all the UPs of today.

I mean, I got called back for the Mary Poppins Musical!!! That would usually have me bouncing off the walls, but I think because of the stress, I'm just evened out for the day.

But, really that is a pretty amazing UP!

I made callbacks! Wahoo!

And they start early in the morning. So, good night!

Day 84 of 365 Days of Up

Thursday, March 26, 2015

I didn't see that coming...

I tried out for another play tonight!

Mary Poppins!

I'm not sure if I am cut out for being turned down 3 times in a row so I am hoping that the third time really is a charm. Callbacks are Saturday so I am assuming that I'll hear something tomorrow.

That was my UP. Auditioning and seeing some theater friends.

My nervous face just before auditioning.

Now for what I didn't think would be an UP and the only thing keeping me getting through was the thought that I had to be on the mode of "practical perfect in every way":

Sister's IEP.

Duh. Duh. Duh.

When you have a child in school with special needs you have something that is called and Individualized Education Plan (IEP). You sit with a team of educators and discuss all the goals that you want your child to be able to accomplish. It sounds nifty, but it can get hard because in needing to get all the help for your child that they need, you sometimes, have to focus on what they can't do.

It's not really the funnest time to sit and talk about the negatives in your child's achievements or lack thereof.

I stayed positive even through the negative and it actually was a very successful and motivating IEP.

I walked away feeling so thankful for Sister's teacher, Dr. H and how he knows Sister so well.

I took my positive energy home and stayed UP until it was time to head out for my audition.

Then I got to my audition and a bomb was dropped.

Or so it seemed.

While I was waiting for my turn to audition I decided to check my emails.

An email from Dr. H and it wasn't a happy one about Sister's successes in class that day.


It was a letter informing me and the other parens of the kids in his class that he had been told this very afternoon that his contract was not going to be renewed.


I am shocked.

I hope it didn't show in my audition.

I don't think it did.

But, I am still feeling it now.

So, after all the success Sister has had with Dr. H this school year and the amazing IEP goals he had written up for her he is only going to be around until the end of this school year.

I. Did. Not. See. That. Coming.

I just got done telling you all about what an answer to prayers Sister's teacher has been.

Now I am telling you that he may not even be able to help her through the 5th grade.

To say I am shocked might be a bit of an understatement.

And, yes, I did send the principal a letter.

I just hope I get a response.

A Leap of Faith

My UP today didn't really happen today, but it's one of those things that was so UP that it carried into today and just kept me smiling.

There has been a REALLY TOUGH situation the last while for Sister at school.

I put "really tough" in all caps because I need to emphasize how awful it has been.

To protect my daughter I will not go into detail, but I have learned that Sister is greatly and heavily and thoroughly affected by her environment.

It's part of her Fragile X Syndrome.

Part of her mental impairment.

Part of her personality.

Anyway it has been no where near slightly easy to help her through some tough times.

There was a point where I had no idea what to do, how to handle the situations or how to move forward.

I finally put my faith in the hands of the Lord.

That is the best way I can explain it.

I took a complete and total leap of faith and let my Heavenly Father guide me blindly to what should be done for our daughter to improve her situation.

This was not a bandaid fix.

It wasn't going to be a quick fix either.

And there was not just one way to solve or handle the issues.

So I just leapt.

I know we are not supposed to mix church and state or church and public school, but this is my side the story, my blog and I'm telling it how I feel best.

We, as parents of children with special needs, tend not to trust our children's educators. We worry that they are just worrying about the budget, the legalities, the regulations the red tape and not really thinking of the best scenario for our child.

I'm telling you that it is possible that your child's teacher can be capable of doing great things, miraculous things, if you trust them and have faith that God is leading you the right way.

I have been amazed and inspired by the compassion, care, concern, concentration, and effort that has been put into action on behalf of Sister by her teacher Dr. H.

After talked bluntly with him and expressing my feelings and concerns he has implemented inclusion time for Sister, techniques, and behavior plans that are bringing about HUGE changes in her and showing confidence I thought she had lost.

I've seen miracles.

Not gargantuan ones.

Little ones.

But little ones are so welcomed.

I am feeling incredibly blessed that because of Dr. H's efforts that not only am I seeing the differences in Sister, but my parents and siblings are too.

I am so grateful for the path that Heavenly Father has led me on. A path that is leading to Sister's success.

I love seeing pictures of Sister doing fun things at school, showing her cute personality.

Today I received this one:

Those are all books she brought from home or borrowed at school. She even has a book mark for each one! I love it.

Along with her enhanced reading fetish lately, she also LOVES to bring home little "stories" she has typed up and printed from the computer. She is always so proud.

When she started bringing these home I thought it was just another way to keep Sister happy at school.

It was much more than that.

Yesterday Dr. H sent me this link to his recent blog post and I was so happy to see there was a much larger purpose to her typing.

I highly suggest you read his post.

I also am so excited that he is starting a GoFundMe account to help work towards his goal of helping his kids succeed! I think it is awesome that a teacher, who really gives so much of their time and talents already, to want to raise money to help his students even more.

And hey, it will help our daughter too... so of course I'm gonna ask you to check it out.

Day 83 of 365 Days of Up

Tuesday, March 24, 2015

Can't Last Too Long...

Remember my "Quick Bike" post?

Well, it really wasn't a quick bike ride. Just the post was quick. We were actually gone for an hour or so. We took our niece, Yaya, with us.

See he cute little face smiling through the window of the bike trailer? She was so happy to be along for the ride.

We took part of this new biking and walking trail they finished here in Orem.
It goes through several cities. We went through three.

Just like a typical Y2K kid, she could only handle the scenery for so long. This is her "relaxing" with a good show on Netflix on my phone. Ha ha!

After our fun outing her mom came to pick her up and then Marc and I were getting ready for our big outing for the night.

Marc had been planning to take me to a local Thai Food restaurant and I had been planning on taking him to The Secret Garden musical at the Scera.

The food was great!

The play was great!

The company was impeccable!

I sure love this man!
I really, really love this picture of us! Marc always like to commemorate our dates with a photo.
 I was trying to teach him some of me photography skills with angles, who to hold the camera and lighting. It was tough teaching him the importance of angles in the harsh overhead lights of the theater... but he was having fun with it...
He's trying not to squint here. Ha! 
I was showing him how the lighting changes the shadows with our angle and then he just started getting goofy.
We decided he looks like a younger Kenny Rogers here...
 Anyway, we had a great time. We had never seen the musical before but have been fans of the movie and the play was great! We took a commemorative picture out front with the nostalgic Scera Billboard.

On Saturday we went and picked up Marc's parents in Santaquin and thenvheaded out to my sister, Jessie's new place and had sloppy joes and had a great time out there.

Our kids love it out there. It's fun to see the kids doing so many creative things together. They were building huts, playing games, feeding and brushing the pony, playing with the dogs, Ranger and Gunner, and they even started making movies. I can't wait to see the movies they are working on. They still have to finish them.

I'm getting super excited for the annual Easter party Jessie has at her house! It's gonna be epic this year! Especially since Daniel will be here! Yippee!

So those were all the UPs I didn't take the time to write about over the last few days.

Quite a few good ones, huh?

I think so.

Today I sent Baby to school since she had no more fever and woke up happy as a clam and ready to go to school. I took Ranger to his vet check-up and got the word that his ears are all good now, so no more meds! I got our tax info turned into our tax people. Then I popped into the Thrift Store and found a couple spiffy little things for me that I was quite happy about. I came home and got a bunch of schedules, pictures and charts laminated for the kids and some of their needs.

It was all UP.

Then, just before leaving for a meeting Marc showed me some hives that were all over Baby's torso...


It can't last for too long you know.

I might actually think life was easy.


Day 82 of 365 Days of Up

Monday, March 23, 2015

I lied

I said I would give you all the low-down today.

I have an excuse.

So last night Baby started acting sick.

This morning she had a fever of 102.

So, she wasn't exactly a happy camper.

I spent a lot of time snuggling her and holding her.

I didn't exactly get anything done today.

It was one thing to get things done with her in my arms when she was a baby Baby, but at five and a half, she is a little too much to lug around.

So I did nothing except for spend the first 4 hours of my day snuggling, holding, and calming Baby.

It was actually nice.

The fever medicine kicked in and I was able to take her to her dentist appointment.

That's one thing a lot of people probably don't think about much when it comes to special needs children and dental issues. It can be pretty awful when you are dealing with hyper-sensory and hyper-arousal.

She wasn't really happy at first.

Then they put in My Little Ponies and she was good to go.

This moment was my UP today:

Smiling in a dentist chair... yup. That's a good one!

Day 81 of 365 Days of Up

Sunday, March 22, 2015

What I Remember

Gee wiz!

Sorry everyone... I just seem to be finding it a priority to go to sleep these last few days.

I know, I hate leaving my fans feeling unfulfilled, but that is life, my friends.

(I REALLY hope that you all sensed the sarcasm in that)

So, again, this is short and sweet.

My goal, tomorrow, is to sit down and give you a real blog post.

I will do it.

I must do it.

OK. OK. I don't have too. I just really want to.

Is that OK?

Is it OK that I want to tell you all about my weekend, as much as I can remember at this point.

Which might not be much by tomorrow.


I think I am just getting old.

I forget things I did yesterday.

In fact, funny thing I read the other day that I must share:

My UP today?

Well, it was quite simple, really.

I didn't get my arms tugged on all through church.

That was nice.

And we had a family over for dinner tonight that we have not had here before.

It's always fun to have new people for dinner.

Old people are a little tough...


Get it!

People for dinner?



Day 80 of 365 days of Up