Saturday, January 31, 2015

Both Sets

This day was full of great things that could only be called UPs!

Play practice today was grand and I think I am even getting the dances down better, and boy do we dance! Woo! It feels great though to be on stage dancing and singing and having fun! I am surprised how much I love this stuff! I think I even have my lines about 90% down and I am getting better at my staging!

Oh! And did I mention we had costume fittings yesterday? That was fun! My costumes make me giggle! 3 in total, and they are really fun!

Have you noticed how many exclamation points are in this post already? This day must have been great!

I was able to get some of my design work done and it always feels good to get... ah crap.... I forgot to send off one of my proofs! Dang it! That's a bit of a downer... oh well, I guess I'll just send it in the morning...


Back to having fun.

I took Brother to watch our good friend's daughter play her basketball game at the high school.

It was a loss for our team but it was a win for the crowd participation and the intensity of the game played!

the boys across the way, standing on the bleachers may have been the biggest cheerleaders there...
and that's saying something if I was there too...

 The progression of Brother's photo op....

That's CeeNee sitting next to Brother (smile)

My dear friend

Brother left the seat behind me and went down to "socialize" in his own way... on the outskirts...

Aaaaaannnnd during half time I got to stand up and dance to Beyoncé's "All The Single Ladies." It was just fun... it just was.

Plus, it was extra fun for me because there were so many people being SO SWEET to Brother! So happy to see him and talk to him. I just love it. I love knowing that even though Brother doesn't always really reciprocate social aspects, these kids just know him and keep trying anyway.

I just love it.

I also have to insert here that I have been so impressed with the huge and particular efforts that our sweet friend and neighbor, CeeNee (name has been changed) has been making with Brother. I mean she really is genuinely kind to him and always makes an effort no matter how hard he is being. He may act like he doesn't like it, but he does. He really, really loves it.

After the game we left to go home and Marc's parents, Lynne and Gary were there to visit! Lynne had cleaned my kitchen counters and done all the dishes! Talk about making my day! And there were a LOT of them people! a LOT!

Not only had they cleaned but they also brought pizza for us for dinner!




Then Gary started having some fun with the Sister and Baby...

They were trying to look like angels. It reminded me of when my dad would do that for me.

After Gary's angel school, we all just sat and casually visited and just had a good time talking

Then I started getting more work done while Marc got the girls to bed.

At about 9:00pm there was a knock on the door and it was my parents coming to visit! They were actually coming to check out Baby's broken rocking horse to see if they could fix it.

I bought this precious rocking horse at a yard sale about 15 years ago. Brother, Sister and Baby have all ridden on it to the full extent of their over-loaded sensories--meaning they rock on it so hard that I am surprised it doesn't flip completely over. Needless to say, it's been a good horse.

My dad took off the part that needed to be fixed and we'll see if it will give us another year, at least.

They also stayed and I made a healthy version of a pina colada.

It was really nice to hang out with both sets of parents today!

It has been a phenomenal day!

Thursday, January 29, 2015

A Night On The Town, Broadway Style

A great day for UP!

But the funnest part was going out on a middle-middle-of-the-week date with Marc.

We went and saw A Night of  Broadway at the Scera Theater.

I wasn't too sure that Marc would enjoy this so much, I've kind of thrown him into this whole theater thing... but he loved it! We both loved it! It was great! Most of the songs I had actually never heard, but they were all amazing!!

Plus it was fun to get all dressed up for a night at the theater!

That's something that Marc and I really enjoy lately—getting all dressed up for a night on the town.

It was so fun too because I was able to see a lot of my friends from the Addam's Family and they were all amazing!

Marc and I were thoroughly entertained.

Have you ever seen that "Jerry Seinfield" episode where Jerry dates the girl with Man Hands? Ha!
This picture makes me think of that ... that's my hand over Marc's beard! He!

Taking selfies while we wait for the next act to start.

After it was over we just had to get a picture in front of the entry decor to memorialize the night:

After talking to some friends and moseying a bit we decided we needed more pictures to commemorate our date:
So we took some in from of the Scera stained glass window...

And of course in front of the Statue of Liberty! 

After it was over, we had to have more fun so...

we went to the grocery store!

Marc even took pictures while we were there too!

Yep, we're married.

That's how we roll.

Wednesday, January 28, 2015

Up and at 'em


Let me think about today...

Oh ya! My UP today is that I got up and out of bed at 6:20 instead of 7:00 to get Brother up and ready for school while simultaneously doing exercise and practicing my lines for the play.

It went like this (dream sequence music):

MIND: Rachael, wake up.

BODY: Just 8 more minutes... isn't that how much I have left on the snooze button? ...

PHONE: tiNgLE, TInglE, tiNGLe, buzzzzz

MIND: Rachael, get up!

BODY: I know my goal was to get up at 6:00 but it's 6:08 and if I push snooze one more time it will be 6:16 and that will be close enough...

EYES: I can't keep these lids open.

(now in a faster more urgent undertone)

PHONE: tiNgLE, TInglE, tiNGLe, buzzzzz

MIND: Rachael, get up!

BODY: OK! Let me slide sideways off my bed until my legs hit the floor and then I will plant my face into the side of the mattress and get up from there.


EYES: Is that Marc or the doorway? Is the light on or off? Am I open yet? ... Oh, OK, not quite. Alrighty, here we go.

MIND: Yay, you did it! You're up! Woohoo!

BODY: Go downstairs, turn on Brother's bedroom light and tell him to get up, walk to the exercise room, get on the tread mill, put my head phones in and find the recording of my lines on my phone.

MIND: Take out your headphones and yell to Brother to get up again, cuz you know he's not.

MOUTH: "Hey, [Brother], get up!"

BODY: Move that elliptical!

MIND: Let's go over your first scene.

MOUTH: Hi Mrs. Pinkerton ...

MIND: Brother...

MOUTH: Brother you better be out of your bed!

MIND: K, next line...

MOUTH: Where? ... Huh?... Oh! ....

MIND: Brother...

MOUTH: Brother, you better be getting out of your pajamas!

EYES: 8 minutes...

BODY: OK, it looks like I'll only get 15 minutes of the elliptical in today, better go harder.

MOUTH: Your so lucky! ... Wow! ...

MIND: Time?

EYES: 10 minutes

BODY: go harder!

MIND: Brother...

MOUTH: Brother you better have your pants and shirt on!

MIND: OK, next scene... Why won't my phone let me swipe the next line. Ugh!

FINGERS: Tap, tap, tap, tap, tap.... push-tap, push-tap .... smack, smack, smack ...

EYES: 12 minutes!


MOUTH: Hi! ... wand ... all the fun ...

MIND: Brother...

MOUTH: Brother you better have your deoderant on!

EARS: I think he just said something to me but I can't make it out over my headphones.

MIND: He's probably screaming at you.

EYES: 13 minutes

MIND: You know darn well he's not dressed yet.

MOUTH: You better be getting ready in there! I have 2...


MOUTH: ... 1 minute left before I come in and check on you!

BODY: Go harder! One minute left.

MOUTH: Really Pinkalicious? ...

EYES: 16

BODY: done

MIND: Go check on Brother.

EYES: He's still in his pajamas!

MOUTH: Ugh! Really?

MIND: Here we go again.

BODY: I'm so proud of myself! I just exercised and got Brighton up and ... out of bed before 7:05 this morning!

HEART: Life is good.

Tuesday, January 27, 2015

Short and Sweet

Today was just a day.

Nothing exciting.

Nothing absolutely terrible.

Just a day.

It was kind of a discouraging day to be honest.

One of the reasons is because I got the psychological evaluations back for the kids and that is just always hard to read on paper how much your kids just don't match up to the "norm."

So after reading that email this morning and getting the kids off to school I just took a nap.


Stress makes me tired.

And hungry.

Since I started yesterday to really crack down on how I eat I thought I would take the nap option.

So that was my UP for today.

I awarded myself a nap.

The End

Day 27 of 365 Days of Up

Monday, January 26, 2015


Today, my up was that I did my dishes, cleaned off the kitchen counters and vacuumed the entire upstairs...


drum roll please...

cleaned the hall bathroom!

Ta da!

Yep, it gets pretty exciting for me as a work at home mom to be able to do motherly things like clean house.

I bet there are some of you out there who wouldn't have chosen cleaning the bathroom as your UP for the day!

Here's a thought for today if my little UP isn't UPlifting enough for you:

"Let all things be done in cleanliness before me." —Doctrine and Covenants 42:41

I know He (God) is not talking about a clean house, but more our attitudes and actions.

But, I have to say that when we live in a clean house it seems much easier to feel at peace with other things going on in Our Life.

We have chaos enough without adding the disorderly household.

So be happy if you cleaned your house today.

You did more than you realize...

Day 26 of 365 Days of Up

Sunday, January 25, 2015


Did anyone notice I missed a day of blogging?

I did.

It's tough to have a goal of doing something specifically every day.

But I guess in 25 days only missing 2 days is really pretty good for me. That means by the time I have made it to 365 days I should have only missed about 17 days.

Hmm. Not bad.

But I've noticed that if I give myself any leeway that I sort of take advantage of it, so if I say I can miss 17 days this year I might take 15 of them all in two weeks and then I stress myself out trying to not miss anymore days at all from February to December. Then I stress about whether it is still meeting my goal if I miss 30 of the 365 days of UP. Then...

Wew! OK, getting worked up here, people. I've only missed 2 days so far...

let's leave it at that.

Yesterday was really busy.

Kind of a whirlwind of projects, chores and caregiving.

My UP though was totally unexpected...

Remember way back when I took Baby to my play rehearsal on choreography day and I decided that day I would take her to the dance class I had heard they have for special needs kids at The Dance Club here in Orem?

Well... yesterday I finally took them.

All three.

I was doing it, really for Baby, but hoping that Brother and Sister would be interested.

I had brought it up the week before and Sister screamed at me and Brother started to whine, so I new it was going to be one of those things that would go down in Our Life history as a "weeping, wailing and gnashing of teeth" day.

It was.

Oh my goodness was it!

I tried to keep the day really low key for the kids most of the day by just letting them hang out and play and non-challantly throwing out how fun it would be to dance today. Of course each time that was met with a solid no, or a quiet whimper, which wasn't, actually, too bad of a reaction so I thought this might go fairly smoothly.

I have been doing this for about 15 years now so I have finally learned better than to just trust my hopes, but to rely on my instincts.

I brought Lindsey along.

Good thing too.

Lindsey walked a smiling Baby and a whining Brother out to the car while I carried my tall, lanky, squirming, kicking, screaming, head banging, name calling 9-year-old and pushed/folded/stuffed her in to the Suburban like I was trying to fit a giant octopus into a mini cooper.

Lindsey and I endured Sister's screams, insults, back seat kicking, and complete and utter derailment while also enduring the hyper-sensory endured melt-downs of Baby and Brother.





I kept thinking, in my head, I can't believe how crazy I am that even during all this I am staying fairly calm and letting Sister know that we were just going to give it a try and if she didn't like it, we could leave all while trying to sooth Brother and Baby with the consoling I was offering to Sister.

That 5 minute ride seemed like 45 minutes.

Then we got to the parking lot.

I still had to carry Sister into the building so that she wouldn't run off in her complete and total meltdown.

As we entered the doors, which were glass windows so I am sure that our entrance wasn't quite as surprising to those who had been watching us approach them, Sister's screams got louder and echoed in the vaulted ceiling foyer.

Everyone was looking to see how had lost and arm and seemed to be confused to see there was no blood as we entered.

I couldn't find anyone in the office so I had to take my wailing 9-year-old and my whimpering 5 and 15-year olds through the maze of doors that looked like I might find someone of authority in there.

I was trying to find someone because I was supposed to fill out paperwork so they could participate in the class and we had arrived a little early to do so.

Well, because of the tender mercies that occur in Our Life often, the lady in charge could see the struggle I was having trying to hold Sister on my hip and finagle the pen and forms so she just said, "You know what, why don't you just go try out the class and see if they even like it and you can fill this out later."

I was so relieved to know she wasn't like the checker at the grocery store that didn't seem to notice my struggle in trying to pay for my groceries and keep Baby within 5 feet of where I was...

There are people out there who "see" it, you know.

Anyway, we went down the stairs with the still wailing Sister in arm and the still whimpering Baby and Brother tailing behind with Lindsey down a long hallway that contained our family noises with quite a bit of reverb so, of course, everyone waiting in the hall watching their children dance were aghast at the site of our motley crew of raw emotions and pitiful faces.

Then, when we got to the spot where the special needs dance room was located we had time before the class would start. I was worried about this overflow of time because I wasn't sure how the kids would do in that 15-20 minutes of waiting for the thing they were not wanting to do.

But there were windows.

There were windows to watch the ballet class that was currently happening in the classroom across from ours.

All three kids were in awe of the ballerinas and couldn't take their eyes off of them. It was so peaceful as we watched this sweet young girls kick, spin, sashay and leap about the room as if it was no effort.

Then the teacher of that class, when finished, walked across the hall to the room where our special needs kids would be getting taught.

This amazing teacher who has been transforming these beautiful ballerinas was now across the way volunteering her time and talents to work with children who may never have a chance to dance like this. There were also youth volunteer dancers who came in to help.

Sister still would not go in, and made it loudly clear that she would not, but Baby and Brother were intrigued enough to at least go in and try it out.

I thought, for sure, after a few minutes, Baby would start spinning and twirling with the kids in the room but she feel apart after about 15 minutes and I needed to take her out.

Brother, however, wanted to stay and Lindsey, Baby, Sister and I really had a great time watching him learn steps and techniques and even part of a dance routine.

Brother was really excelling in there and couldn't have looked happier or more proud of himself. I have to say that he really tried hard to impress his dance teacher and I loved seeing his embarrassed pride each time his teacher praised him for work well-done.

After class was over, all 5 of us exited the dance room, walked up the stairs, went to the office and got some papers to fill out, then walked out to the car, got in, and it all went well.



I'm so excited for Brother to be in dance class!

I am still going to try to get Baby to try it out each time.


Today Sister was looking at her yearbooks (She does this often just to write down name and memorize people.) She was in a goofy and humorous mood and saw that the row of pictures on one of the pages was not complete with the last picture that should complete the page or pattern of the others.

So she drew one in.

Made me laugh and I haven't stopped smiling about it yet.

I, also, can't forget to tell you that Sister calls Oklahoma, "Poke-a-homa."

He he he!

                                                                                                                                           Days 24 and 25 of 365 days of UP

Friday, January 23, 2015

Between Being Busy and Being Numb

I keep thinking about how I really want to show you videos of Christmas and I record video of fun things around the house, but I have not had time to put anything together for you to watch on my YouTube Channel. I miss doing that.


It's fun for me to show you how my life is in real action.

I love to write, don't get me wrong, but sometimes I just can't capture things in words the way I would like to.

Making movies is fun.

Nothing professional, mind you, just good ol' home movies.

In fact I noticed that the LDS Film Festival is coming up this March and they have a section for short films (like 2 - 5 minutes) that anyone can enter in and I got so excited about the idea of making a little film documentary about Fragile X in my world.

I'm too busy with things...


Sometimes I'm busy, but I just sit in a numb daze staring at the computer screen trying to focus on what I was supposed to be doing.

But, between being busy and being numb, putting together videos just hasn't fallen into my list of to-do's.

I want to though.

Maybe you'll see a little Christmas recap by Spring and maybe next year I'll get in a little Fragile X Documentary for the LDS Film Festival.

Who knows.

Anyway, today was one of those days where it was decent, no awful things happened, no out of the ordinary occurrences and nothing that would really cause me to be down.

But, I just felt numb for whatever reason.

Depression can do that to you.

It's weird that way.

Your life is great but it tries to remind you of your struggles and pain just, well, because.

Really, I have nothing to complain about.

I mean Brother did miss the bus this morning. I had to change both the girls' bed sheets. I couldn't get the diaper box open after I had realized there were not more diapers on the shelf and Baby had already run off to the living room and decided that, instead of going into the bathroom to pee, why not just stand next to the couch in the living room and pee there.

I guess I could complain about that.

I am behind on my work and tired so I can't seem to keep my eyes open long enough to get the work done without dozing into short naps consisting of my typing stuff likeeeeeeeeeeeeeeeeeeeeeeee this because I fall asleep with my fingers on the keys.

Maybe I could complain about that.

I had to load all 3 kids in the car to run to a doctor's office to pick up some vitamins for my restless leg...

I will not complain about it, but I will tell you kind of how it went:

Mom - "OK kids let's all hop in the car, I need to run a quick errand."

Kids - "Can Ranger come with us? Can I sit in the middle? Can we go to the toy store? Can Ranger sit by me? Where are we going? I don't wanna go! I wanna stay home! This is stupid! You're a dumb mom! Turn around right now."

Mom - "Sister get back in the car! Baby sit in your seat! Stop pulling her hair! Just let her hold him (Ranger). Stop crying! Stop screaming. Stop hitting me! Don't throw that at me!"

Kids - "K, Mom, you can turn around now. I don't want to go here! You missed it. Let go home now. Too bad, you missed it."

Then there was fighting over the middle spot and crying and wailing ensued.

Luckily there was a Wendy's on the way home.

The kids LOVE Wendy's! They'll eat it every time.

So it all ended well in the end.

Then Lindsey can to watched the kids while Marc and I went to an activity at the church to play games with other couples and adults.

That was my UP for the day.

It was just fun.

And I let myself just have fun.

Fun is up and up is fun.

It makes a great day for everyone.

Day 23 of 365 days of UP